28 Feb

Rare Disease Day 2020

‘Rare Disease Day’ (RRD) is celebrated around the world on the last day of February every year, since 2008. Rare Disease Day is about raising awareness for people living with a rare disease and giving people an opportunity to share their story of life with a rare disease. There are around 280,000 people in Ireland living with a rare disease. There are more than 6,000 known rare diseases. You can read more about the campaign at https://www.rarediseaseday.org/ If you or your family member is living with a rare disease, you can get involved and share your story on the Rare Disease Website. You also read about other people’s experiences at the following link – https://www.rarediseaseday.org/tell-your-story. You can also share your blog post, photo or video testimony about life with a rare disease through the Stewarts Care Website and social media accounts. Please contact the details below if you are interested in sharing your story. This year, Stewarts Care will be hosting its’ first ever event in honour of Rare Disease Day. Stewarts Care is joining 103 countries in celebrating RRD 2020, with 94 events registered worldwide so far. Please join us in celebrating Rare Disease Day 2020 on Friday 28th February from 10-12pm in The Great Hall. Everybody is welcome. There will be tea, coffee, cakes, photo opportunities and an art piece display in honour of the day. Everyone is welcome, so please come along to show your support and raise awareness for people living with a rare disease. If you are interested in getting involved, for example – • Baking goods for the morning • Displaying your art work – painted hands is the logo for this years’ Rare Disease Day campaign • Performing – singing, dancing, drama • Sharing your story of life with a rare disease Please contact Beth at Beth.Milofsky@stewartscare.ie or phone (01) 464 7835 if you have any questions about the event or would like to get involved. Looking forward to raising awareness together for people living with rare diseases, Beth Milofsky Speech and Language Therapist Stewarts Care